Week7 symptoms after stopping steroid

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(with some pictures)

2017-12-24
The scab which were on the both shoulder peeled off a lot, and new normal skin were being created beneath. Body temperature was in the higher 36 degree range, but heart beat was around 100. I scratched again the upper center chest, which was the only part I scratched, exudate came out and wet a little. This part was the slowest part to recover, I scratched there when it started to be recovered, but the area of symptom was limited. These days, the exudate from ear back was almost nothing, and I didn’t mind the dirt of pillow sheet. Arms and legs were very well, but still very dry, which was far from the normal healthy skin. My legs are still stiff from exercise 2 days ago I think, so I just walked around. Last time I got shower at night, my skin got super dry and itching sensation attacked me, so this time I took shower in the morning, I couldn’t the effect of that though.

2017-12-25
The scab which were on the both shoulder peeled off almost, and it seems like very normal, but not perfect yet. The color of the skin on shoulders are not perfectly well, and I felt the skin of shoulders are still thin. Chaps are only on the back of hands, and that’s not burden for my life, I think I just got used it. I heard the symptoms of other patients and noticed everybody had experienced hardships, and I felt I couldn’t be defeated with diseases. I can’t stand for the end of my life in this way, I strongly determined I would be better and come back again!! Body skin in total were very dry. I just do what I can do. Ear has almost no exudate, and it made me very happy. Head skin had sometimes itching sensation, but had not many desquamation. My face especially around eyes would become very normal, I would go around very far away. Temperature was in good condition, and my doctor said I was becoming very well.

2017-12-26
Upper center chest was still wet and had taken time the most to recover. Temperature was remained in 36 degree ranges, and my body could move very smoothly. Face was dry-white and could see some desquamation, I felt I need more oil on my skin. The back of right hand has some chaps, which was like I had used to when I was a kid, and it hurt a little. However, it was very easy compared with other symptom of peak time of steroid withdrawal. And today I had my hair cut in the hospital, and my hair got shortened especially around neck, ear, and front hair, which could reduce the itching sensation. I’ve never spend such a slow life since starting working, and the symptom was of course no good but good experiences. Maybe I can sympathy with others hardships a little more than before. I am reading books, practicing the piano, creating some music by DTM, learning IT-related technologies, and practicing speaking English. I am just doing what I wanted to do. I would like to become better as soon as possible, but the also started to feel to say here more at the same time…

2017-12-27
Scratched upper center chest again and got wet, but got dry in the morning, so it is very eased compared with the peak time. I’ve already passed the peak time of withdrawal. Neck had still itching sensation, and exudate with little blood came out when I scratched there. My doctor said it was becoming better little by little. He also said that my face color became better, desquamation reduced, and became more dry. I felt I need more oil and I could be very normal. Let’s use my free time for what I want to do today as well.

2017-12-28
Upper center chest, still very itchy and I scratched and little wet again. The total amount of desquamation reduced a lot, and I felt a lonely in a funny way. The peak of the period of reborn my skin is passed, I think. My neck looks like very normal from my perspective except the part where I still have symptom, but still itchy when I sleep. I played soccer and badminton in the morning, and it was very good exercise. I didn’t wear a lot and could sweat a lot, it made me feel very well.

2017-12-29
Upper center chest becoming better, still a little wet though, the range of symptom was reduced. The amount of desquamation was also reduced a lot, and it was very easy to clean up in the morning. In total, the body are dry and some part got some oil and becoming better, my doctor said. There were still some part which has almost no oil, so I think I need more time to fully recover. I thought that some people, who eats a lot of oily foods, have oily face, so I think I should eat more oily foods? may be. I searched on the internet, and it said that we need to ingest vitamin A, E and alpha-linolenic acid to excrete skin oil more. Many pages explained the importance of vitamin A and E for skin to make better blood current and skin recovery, but I would start to ingest more alpha-linolenic acid. Let’s see how the outcome would be after 1 week.

2017-12-30
So, yesterday I conducted 2 human body experiments with my own body. First, I ate fast food with my patients friends, which was the king of fast food Mc’donald. I ordered a double cheese burger set, including french fly and M size of coca cola, and 10 pieces of Chicken McNuggets as well. It was just 10 minutes walk from the hospital and I had though I wish I would eat, because I hadn’t eaten them for a while. I got full and satisfied the taste of junky food. At night however, of I could say as expected, itching sensation attacked me again and scratched more than yesterday. I was used to taste of hospital meals and additive substances directly affected my body. The patients who ate burgers of Mc’donald with me also said that it was itchy for a while after eating them. I googled “Mc’donald Additive Substances” just in case, I knew it and I found a lot of terrible information. Maybe this was the last time to eat Mc’donald in rest of my life. The second experiment was to break the water ingestion limitation. My doctor says that I shouldn’t ingest water after dinner. I think this is because water amount would increase by ingesting water after dinner, and this would weaken skin. I took Hot Cafe Au Lait around 200ml and went to bed. As I expected, exudate containing protein came out from the area where I had a symptom, upper center chest, I could feel it by touching and also smelling. I hadn’t ingested water after dinner, so I could notice the increase of exudate as soon as coming out and the importance of water ingestion limitation. The reason why we shouldn’t take a lot of water after dinner more than in a day time, is I think that drinking water after dinner let a body keep the water amount, because we go to bed soon after ingestion and bed keep your moisture. If we take water in day time, it evaporate as your activities with in a day time. This second experiment gave me a knowledge of the badness of water ingestion after dinner, and made strongly me to keep my doctor’s instruction. Maybe thanks to people’s pray for my recovery, I don’t feel to give up my full recovery at all.

~as of 2017-12-24~
・Front

・Back

・Chest

・Neck Back

・Left Arm

・Right Arm

・Knee Back

 

 
~as of 2017-12-30~
・Front

・Back

・Chest

・Neck Back

・Left Arm

・Right Arm

・Right Shoulder

・Knee Back

 

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